We have been hearing from our families, and I want to share with you that we are working on strategies to share our families' concerns with the appropriate levels of government regarding the impacts of funding changes and cuts. We are very concerned about how your child’s human rights are being impacted. We are also very concerned about how these changes will have a long-term effect for our Ds community. I would like to hear from you directly about how cuts have affected your child or loved one so that we can coordinate a message to our government leaders and the general community. Please send me your thoughts directly to janet@edss.ca
REMINDERS:
World Down Syndrome Day – March 21 - is an annual opportunity to raise awareness about Down syndrome and we invite you to get involved.
We have launched a 5x5x5 matching campaign to encourage the community to learn more about Down syndrome and get involved.
Our goal is to raise $5,000 which will be matched by the Government of Alberta’s $5,000 and then the Board of EDSS has decided to match the campaign with $5,000 of our funds put towards our own Endowment Fund at the Edmonton Community Foundation .
This helps us with our training needs for today and our future investments for tomorrow. Check it out here: Why I Care #EndtheStereotypes World Down Syndrome Day by Edmonton Down Syndrome Society
This year marks the 30th Anniversary for EDSS and our board of directors is working on some exciting plans to mark the year with some special occasions.
I would like to invite you to think about your involvement in EDSS and what that means to you and your family. You may be a new family or supporter of EDSS, or you may be one of the families who have been with us now for up to 30 years.
Whatever your journey has been, I would like to invite you to share with me a bit about your experiences – sharing your favorite memories and your family photos – both “then” and “now”. Let’s look back at how we started as we plan the future forward for you and all our Ds community.
Please share these memories and photos with me at guest@edss.ca by March 31st.