Links
Family & Community Support Services
Easter Seals
Family and Community Support Services Program (FCSS) - Edmonton
Edmonton People with Disabilities Resources
Voice of Albertans with Disabilities (VAD) Society
E4C Alberta - Programs & Services
McMan Youth, Family & Community Services
Financial Assistance & Disability Benefits
Family Support for Children with Disabilities (FSCD) - Alberta
Canada Benefits Finder
Disability Tax Credit - Eligible Conditions (Down Syndrome)
Disability Tax Credit - General Information
Disability Tax Credit - Application Form Guide
Registered Disability Savings Plan (RDSP) vs. RESP & RRSP - Comparison
Alberta Aids to Daily Living (AADL)
Assured Income for the Severely Handicapped (AISH) - Alberta
Foundational Learning Assistance - Alberta
Entrust Disability Services - Applying for FSCD, PDD, and AISH Funding
Children’s Ability Fund - What We Do
Disability Support Services
Supports for People with Disabilities - Government of Alberta
Centre for Autism Services Alberta
RAPS Edmonton (Rights and Advocacy for People with Disabilities)
Persons with Developmental Disabilities (PDD) - Alberta
Employment Services
ALIS Alberta - Workplace Resources
ALIS Alberta - Resources for Persons with Disabilities
Chrysalis - Programs & Services
Selections Career Support Services
EmploymentWorks - Centre For Autism Services
Housing & Residential Support Services
Find Seniors & Disability Housing - Alberta
Excel Society - Supportive Living Services
Easter Seals Alberta - McQueen Home
Shepherd’s Care - Eden House
McMan Youth, Family & Community Services
Healthcare & Medical Services
Dental:
Simply Orthodontics - Specialist Team
Pediatric Dentistry: Supporting Special Needs Care
Dietary & Nutrition Support:
Occupational Therapy:
Hearing:
City of Edmonton - Services for the Heard of Hearing or Deaf
MyHealth Alberta - Hearing Loss in Children with Down Syndrome
Vision:
Vision for Children With Special Needs
Equipment:
Health Equipment Loans in Alberta - Canadian Red Cross
Alberta Aids to Daily Living (AADL)
General Health:
Pediatric Autism & Specialty Services (PEAS) - Alberta Health Services
Community Aids for Independent Living - Alberta Health Services
Glenrose Rehabilitation Hospital - Alberta Health Services
Breastfeeding:
Breastfeeding Your Baby with Down Syndrome | La Leche League Canada
Stories | La Leche League Canada - Breastfeeding Support and Information
Pediatrics:
Pediatric Rehabilitation - Alberta Health Services
Pediatric Autism & Specialty Services (PEAS) - Alberta Health Services
HealthyChildren.org - Down Syndrome Health Care Guide
Mental Health:
Dr. Adedamola Babajide Orimalade - Psychiatrist
Raising Children Network - Mental Health For Children With Disabilities
Mental Health Learning & Leadership Community (MYLLOC) - University of Wisconsin
Mental Health First Aid - Resources
Vita Newsletter: Let's Talk About Mental Health and Developmental Disabilities
Speech & Language Support:
MyHealth Alberta - Using Books to Help Toddlers Learn Language
Alberta Speech-Language Association of Private Practitioners (ASAPP)
Down’s Syndrome Association (UK) - Speech & Language Activities
TouchChat App - Augmentative & Alternative Communication (AAC)
Down Syndrome Health Issues - Speech & Language
Down Syndrome Research Foundation - Speech & Communication Guide
University of Alberta - Institute For Stuttering Treatment And Research (ISTAR)
Transition & Continuing Care:
Transition Guidelines for Dependent Youth - Alberta Health Services
Sleep health:
Down’s Syndrome Association (UK) - Sleep and Down Syndrome
Online health resources & Learning:
Advocate Health - Women's Health & Down Syndrome
Planet Puberty
Vanderbilt Kennedy Center - Healthy Bodies Toolkit
YAI - Healthy Bodies Toolkits
Empowering Ability
Nurseline Community Services - What is Personal Care? – UK
Merck Manuals - Difficulty Swallowing (Dysphagia) Guide
Down Syndrome-Specific Organizations & Resources
Down Syndrome Association of Toronto (DSAT) - Useful Links
Down Syndrome Diagnosis Network (DSDN)
National Down Syndrome Congress (NDSC)
Canadian Down Syndrome Society (CDSS)
Children’s Hospital of Eastern Ontario (CHEO) - Down Syndrome Resources
Children’s Hospital of Eastern Ontario (CHEO) - A to Z Health Resources
Sea to Sky Community Services - Down Syndrome Resources
Friendship Circle - 42 Top Down Syndrome Resources
IAHP - Trisomy 21 (Down Syndrome) Resources
Parent Center Hub - Special Needs Resources
Down Syndrome Online
Down Syndrome Diagnosis Network - Resources for New Parents
How to Make a One-Page Profile - Ellie Style
Down Syndrome Resource Foundation - Information in Other Languages
Sign Language in Early Intervention - LifePrint
Educating Kids About Down Syndrome - Down to Life Blog
Helping a Person with Down Syndrome Through Grief
Down Syndrome Pregnancy - Book: Your Loved One is Having a Baby
Free2BeMe - Documentary Film on Down Syndrome
Freya Heart Blog
Gigi’s Playhouse - Best of All Program
Down Syndrome Australia - Communication & Language Resource (PDF)
Down Syndrome Canada - Education Resources
Teach Special Education - Down Syndrome Resources
Down Syndrome International (DSI)
Global Down Syndrome Foundation - About the Anna and John J. Sie Foundation
Reece’s Rainbow
Adult Down Syndrome Center - Advocate Health
Down Syndrome Medical Interest Group (DSMIG-USA)
Jack’s Basket - New Diagnosis Support for Down Syndrome – USA-Wide
General Information on Down Syndrome
Down Syndrome International - About Down Syndrome
Global Down Syndrome Foundation - About Down Syndrome
Down Syndrome Resource Foundation - What is Down Syndrome?
National Down Syndrome Society (NDSS) - About Down Syndrome
Down Syndrome 101 - Online Course
Stanford Children's Health - Mosaic Down Syndrome
Mosaic Down Syndrome Research Study
Self-Talk in People with Down Syndrome - Advocate Health
Acute Regression in Down Syndrome - Research Paper (PDF)
Massachusetts General Hospital - Down Syndrome Patient Handouts
Common & Uncommon Health Conditions in Down Syndrome - Webinar 2024
Massachusetts Down Syndrome Congress - Resource Center
Alzheimer’s Canada - Down Syndrome & Dementia
Literature & Media on Down Syndrome
Supporting Positive Behavior in Children and Teens with Down Syndrome (Amazon)
Down Syndrome: The First 18 Months [Import]: Amazon.ca
Boyfriends & Girlfriends: A Guide to Dating for People with Disabilities (Amazon)
When Down Syndrome and Autism Intersect (Amazon)
A Guide to Good Health for Teens & Adults with Down Syndrome (Amazon)
Teaching Reading-Children W/Down Syndrome: Logan Owlwein, Patricia
WHAT DID YOU SAY: A Guide to Speech Intelligibility in People with Down Syndrome
The Girls' Guide to Growing Up: the best-selling puberty guide for girls
The Boys' Guide to Growing Up: the best-selling puberty guide for boys
Gross Motor Skills for Children with Down Syndrome: A Guide for Parents and Professionals
Educational Support
Inclusive Post-Secondary Education - Inclusion Alberta
Supporting Students - Edmonton Catholic Schools
Early Intervention Program | Alberta Health Services
Grades 1-12 – Elves Special Needs Society
Early Childhood Services – Elves Special Needs Society
About - Individual Education Plan (IEP)
Education Support – The PREP Program
Inclusive Learning - Edmonton Public Schools
WISE - Waldorf Independent School of Edmonton
Alberta Education Rights
Children's Autism Services - Early Education Services
Seden Centre for Child Development & Wellness
Edmonton Public Schools - Pre-Kindergarten Programs
Seden Centre for Child Development and Wellness Contact_Us
Find a School Tool - Edmonton Public Schools
Edmonton Catholic School Finder
Transportation Options - Edmonton Public Schools
DSI Education Guidelines latest.pdf - Zoho WorkDrive
Down Syndrome Online
National Association for Child Development (NACD)
Family-Oriented Programming (PDF)
Inspire My Kids - Diversity & Tolerance Quotes
Resources for Educators
Songs for Littles - Preschool Educational Videos
Math Learning Center - Educational Math Apps
Handwriting Without Tears - Learning Program
Join Vroom - Early Childhood Brain Development
ABA Resources - Social Stories
Autism Little Learners - Social Stories for Home
Watson Institute - Social & Safety Awareness Strategies
Friendship Circle - 10 Alternatives to Restraining a Child with Special Needs
Child Find of America - Printable Resources
National Council for Special Education (NCSE) - Teacher Resources
You Clever Monkey - Teaching Resources
Education.com - Learning Resources
Printable Home-School Communication Log
Education World - Tools & Templates
Classroom Management Resources for Preschool Teachers
Precision Academics - Customized Learning Programs
Alberta.ca Inclusive Education
Do Bugs Need Drugs? - Educational Resources
Alberta Health Services - Infection Prevention & Control Education
Learn Some Moore - Educational Activities
SoftSchools - Free Educational Resources
Super Duper Publications - Fun Learning Materials
Teachers Paradise - Teacher Resources & Worksheets
Reading A-Z - Literacy & Reading Resources
Starfall - Interactive Learning for Early Literacy
Best Buddies Canada - Inclusive Schools Program
Down Syndrome Canada - Education Resources
Indiana Resource Center for Autism - Visual Supports for School
Do2Learn - Social Behavior Picture Cards
Teach Special Education - Down Syndrome Resources
Inspire My Kids - Diversity & Tolerance Quotes
Songs for Teaching - Spanish Songs
FDMT - Educational & Sensory Tools – Canada
Dudley Canada - Special Needs Series
Social Support
PLAN Canada - Lifetime Support for People with Disabilities
Transportation
Dedicated Accessible Transit Service (DATS) - City of Edmonton
Fare Assistance - Edmonton Transit Service (ETS)
Recreation & Inclusive Activities
Leisure Access and Funding:
Undercover Tourist - Disney World's Disability Access Services (DAS) Card
Year-Round Programs:
City of Edmonton - Adapted Programs
Fort Saskatchewan - Recreation Programs
Edmonton Amateur Baseball Association - Challenger Baseball
The Steadward Centre - Adult Fitness & Recreation
Skate Canada - Adaptive Skating
KC Hockey - Contact
Dance Theme Academy
SGS Dance
Amanda’s Academy of Dance (AAOD)
My Gym - Edmonton
Little Bits Therapeutic Riding Association
LoSeCa Foundation Day Supports
Summer Programs:
Family Activities:
Cineplex - Sensory-Friendly Screenings
Landmark Cinemas - Sensory Friendly Films
Natural Beach Living - Printables
Hunny I’m Home DIY - Family Movie Night Printables
Bren Did - Plan a Family Movie Night (Free Printables)
William Watson Lodge - Alberta Parks
ConnectABILITY | Resources for people with a developmental disability and their support networks
Arabic Support & Community Resources
Academics | Edmonton Islamic Academy
IFSSA | Islamic Family & Social Services Association
Indigenous Support & Community Services
Indigenous Psychological Services
Bent Arrow Traditional Healing Society
Alberta First Nations Health Consortium (ABFNHC)
Jordan’s Principle - First Nations Child & Family Caring Society
Child Safety & Protection Resources
Canadian Centre for Child Protection - Child-Serving Organizations
Canadian Centre for Child Protection - Research & Resources
Legal Services
Legal Resource Centre - All Products
Law Central Alberta - Small Claims Court Resources
Shelley McGowan - Legal Services
Law Society of Alberta
Canadian Charity Law - CRA’s Checklist for Registered Charities
King's Printer Alberta - Online Laws & Regulations
Respite Services
Skills Society - Services for Adults with Developmental Disabilities
YWCA Edmonton - Disability Services
Other Organizations, Charities, & Foundations
Edmonton Accessibility Advisory Committee – Edmonton, Alberta, Canada
Max Bell Foundation
Alberta Council of Disability Services (ACDS)
Easter Seals Alberta
University of North Carolina - Center for Literacy & Disability Studies (CLDS)
Hands in Autism® Interdisciplinary Training & Resource Center
Sibshops - Sibling Support Project
Tetra Society of North America
Down Syndrome Network Arizona - Lights, Camera, Auction
Employer Resources
For Employers - John Howard Society of Ontario
Employer Toolkit - Hire for Talent
Language & Newcomer Support
Edmonton Catholic Schools - New to Canada
Language Instruction for Newcomers to Canada (LINC) - Edmonton Catholic Schools
Government of Canada - IMM1344 Sponsorship Application Form
Interpretation & Translation Services - AHS
Get Health System Information in Your Language - AHS
Programs and Services – EISA – Edmonton Immigrant Services Association
Immigrant Serving Agencies City of Edmonton
Nonprofit Management
Charity Village - Communicating Administrative Costs
Management Library- Nonprofit Boards General Resources
Charity Central - Financial Information Kit
Sector Source - Nonprofit Sector Resources
Purchasing Connection - Vendor Help & Procurement Support
Canada Helps - Best Practices for Donation Forms
Volunteer Alberta - Board Governance Resources
Volunteer Connector - Find Volunteer Opportunities
Canada Revenue Agency - Issuing Charitable Receipts
Law FAQs - Canada’s Anti-Spam Legislation (CASL)
FightSpam - Canadian Government Anti-Spam Resources
Policies
Copedia - Writing Policies & Procedures
Sector Source - Staff Management Policies & Practices
Calgary United Way - Gift Acceptance Policies
WCB Alberta - Exempt Activities Rate Manual
Grants & Funding Opportunities
Government & Community Grants
Alberta Community Facility Enhancement Program (Small Grants)
Enhanced Capacity Advancement Program (Alberta)
Alberta Child Care Space Creation Grant
Alberta Child Care Supports for Inclusion
Employment & Social Development Canada - Enabling Accessibility Fund
Employment & Social Development Canada - YESS Strategic Collaboration
ECALA Funding (Edmonton Community Adult Learning Association)
Edmonton Community Investment Operating Grant
Edmonton Grants & Funding Opportunities
Corporate & Private Foundation Grants
Max Bell Foundation - Funding Application
Stollery Charitable Foundation - Funding Guidelines
Jumpstart - Community Development Grants
Sureway Construction - Community Support
Dun & Bradstreet - Grantmaking & Giving Services in Alberta
Muttart Foundation - Training & Funding Bursaries
RBC Youth Mental Well-Being Funding
Howard Webster Foundation - Mission & Funding Areas
Safeway Community Giving Program
Canada Post Community Foundation
GrantWatch - Sports & Recreation Grants
Costco Canada - Community Relations
Bell Let’s Talk - Community Fund
Blue Cross Alberta - Built Together Program
Nonprofit Fundraising & Sponsorship
Five Things Corporate Sponsors Want from Nonprofits
Double the Donation - Fundraising Ideas
Edmonton Community Foundation (ECF)
How to Write a Letter Requesting Sponsorship (WikiHow Guide)
How to Craft a Killer Thank You Letter for Donors
Bonterra - Nonprofit Resource Centre
Alberta PUF (Program Unit Funding) Application Guide (PDF)
Donate a Car Canada - Vehicle Donation Charities
Out of Town/Province Resources
Beaumont - Social Programs & Family Services (Beaumont)
Black Gold School Division - Pre-Kindergarten Program (Beaumont & Leduc)
Fort Saskatchewan - Family And Community Support Services (Fort Saskatchewan)
Blue Heron Support Services Association (Barrhead)
Aspire Child Development Centre (Red Deer)
PREP Program - Education Support for Students with Down Syndrome (Calgary)
Ups & Downs Calgary - Community Resources (Calgary)
Foothills SNAPS (Special Needs Association for Parents & Siblings) (Foothills)
HealthLink BC - Health Library Resources (BC)
PALS Autism School - Advisory Team (BC)
Awasis Agency of Northern Manitoba (Manitoba)
School Transitions - Individual Education Plan (IEP) Information (Ontario)
Toronto Childcare Services - Extra Support Needs (Toronto)
Yaldei Developmental Center (Montreal)
Montreal Down Syndrome Support Group (Facebook Page) (Montreal)
Rocky Mountain Down Syndrome Association (RMDSA) (Colorado, USA)
Ability360 Campus – Arizona, USA (Arizona, USA)
The Arc of Beaumont - Adult Services (Texas, USA)
Miscellaneous
Alberta Health - Continuing Care Complaints – Alberta, Canada
National Organization for Human Services - Professional Development
Institute of Corporate Directors (ICD) - ICD.D Designation
Saltillo - Core Flip Book for Augmentative Communication
Government of Canada - Publications & Reports
Alberta Government Social Media Directory
Canadian Red Cross - Edmonton Help Depot – Edmonton, Alberta, Canada
SA Cinn - Art Cards, Prints & Canvas
Studio C Prospect - Art Referral Form – Alberta, Canada
Amazon Canada - Pencil Grip for Utensils
Vertex42 - Calendar Templates
Blank Calendar Pages - December 2023
Partner Organizations And Additional Down Syndrome Resources
Canadian Down Syndrome Society
Down Syndrome Research Foundation
National Down Syndrome Congress
National Down Syndrome Society
Disability Services
PREP Program
Special Olympics Edmonton
Shifting Perspectives at the Dublin Arts Council
Reece’s Rainbow
Soar: Adapted artistic swimming for athletes with disabilities
Resource Material
STEPS To Independence is a guidebook that provides an opportunity for individuals with an intellectual dis-ability to determine how prepared they are for semi-independent living. It provides a holistic tool to prepare someone for semi-independent living by identifying current skills, determining skill areas for improvement (where more learning can happen) and next steps to focus on.
This material was sourced from www.connectability.ca
GLOBAL Down syndrome Foundation - Medical Care Guidelines for Families & Clinicians
The new GLOBAL Medical Care Guidelines for Adults with Down Syndrome (GLOBAL Adult Guideline) provide first in-kind, evidence-based medical recommendations to support clinicians in their care of adults with Down syndrome. Here you'll find a family-friendly version of the guideline, a checklist, and resources to share with your clinician.
EDSS Resources
Director of Community and Family Services
Julie Boucher
780.944.4224 Ext. 2