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Who is the Edmonton Down Syndrome Society
 The Edmonton Down Syndrome Society (EDSS) is committed to supporting people with Down syndrome and their families, through programming, information, resources and connecting members with peer to peer support.

Vision

A community where individuals with Down syndrome are valued, included, and empowered to thrive.

Mission

To empower individuals with Down syndrome and their families by building inclusive communities, providing impactful programs, services, and support, and advancing advocacy and systems change through collaboration and innovation.


Values

  • Inclusion
    • We believe everyone deserves to belong, participate, and be valued in their community.
  • Dignity & Respect
    • We honour the rights, individuality, abilities, choices, and potential of every person with Down syndrome.
  • Community
    • We foster meaningful connections among families, caregivers, volunteers, partners, and supporters.
  • Advocacy
    • We work to create positive systems change and greater accessibility through education, awareness, and collaboration.
  • Excellence
    • We are committed to delivering compassionate, high-quality programs, services, and support.




We respect the rights, abilities and potential of people with Down syndrome, and we respect and support the role of families and their choices in meeting the needs of people with Down syndrome.

History


More than 30 years ago, a group of families came together with a shared vision for a stronger, more inclusive community. Discover how EDSS began, how we’ve grown, and the people who made it all possible.


Discover our History

EDSS Bylaws


Our bylaws provide the framework that guides how EDSS operates, makes decisions, and remains accountable to our members and community. Explore the policies and principles that help guide our organization.


View Our Bylaws

Annual Report


Take a look at the year behind us—our accomplishments, impact, milestones, and the people who make our work possible. Our Annual Report offers a look at how EDSS is making a difference in the lives of individuals with Down syndrome and their families.


View our Annual Report

Membership


EDSS membership is about more than being part of an organization—it’s about being part of a community. Learn about the benefits of membership and how you can connect with families, access resources, participate in programs, and help strengthen our community.


Become a Member 

Leadership


Our organization is guided by passionate leaders who believe in building a community where people with Down syndrome are valued, supported, and empowered to thrive. Meet the Board and leadership team who help shape the vision and future of EDSS.


Meet Our Leadership