About
Membership
The Edmonton Down Syndrome Society comprises of more than 300 registered members. They represent every age group, from pre-birth to end-of-life, and each unique story provides context and hope for the next generation of parents and families.
You can renew or register for membership here, simply download the form to your computer once you have filled it out, simply hit Submit Form which will automatically send your completed form to EDSS. we will then check over your form and send you an invoice to pay your fee.
While the EDSS supports all those individuals born with Down syndrome and their families, we also welcome those families who have children with obscure chromosomal anomalies (OCA) who present with developmental and medical challenges similar to those with Down syndrome.
Becoming a member
Membership is available for families, individuals or organizations. Membership can be registered throughout the year and runs from January to December.
The annual Membership fee is $40
Your 2023 EDSS membership includes:
- Access to Manager of Family Services (MFS), to help families navigate the disability system and provide support to parents in accessing programs and services for their children throughout their journey.
- Access to networking opportunities for families, peer-to-peer support, Visiting Parents Team, learning sessions with guest speakers, weekly newsletters, family-orientated social events... and more!
- Access to extensive resources/information specific to Down syndrome available from our resource lending library and our MFS.
- Access to in-service learning (schools, daycares) about what Ds is, possible medical concerns, how Ds could affect them in the classroom and tips and tools to support positive behavior.
*If your EDSS membership is for a person born with Ds they will have access to programs such as: Subsidized speech therapy, Occupational Therapy, Behaviour therapy, Physiotherapy, and Musical Theatre and in our new Joey Moss Literacy Centre for Excellence, we run literacy and numeracy programs, vocational skills, and independent living programs for adults 16+. There are also social programs, drop in baby-toddler group and activity groups for all ages.
EDSS programs are only for members born with Ds.
Thank you for your support!
Withdrawal of Membership
- A member may withdraw from the society by tendering his/her resignation in writing, either by email or letter, to the office.
- A member may be expelled from the organization if they have given cause. This can only take place by a unanimous vote by the Board of Directors.
- Loss of membership may occur if membership dues are not paid within the grace period (30 days).